02/20/2025
Today, members of the cystic fibrosis community from across the country are coming together to advocate for people with CF during our 18th annual March on the Hill. We need your help to ensure Congress hears our message!
The cystic fibrosis story of transformation and progress does not exist as it does today without the NIH or FDA, from discovery of the CF gene to bringing new CF therapies into the hands of patients safely and effectively. The NIH and FDA will remain essential as we work to ensure all people with CF have a treatment that addresses their underlying mutation – and someday, a cure. Congress must protect and ensure these agencies have the support and resources needed to continue this vital progress.
While advances in CF care are helping people live longer, healthier lives, cost and access are barriers to care for many people with the disease. Half of children and one-third of adults living with cystic fibrosis rely on Medicaid to help afford their treatments, medications, and inpatient and outpatient care. That’s why we’re urging Congress to protect Medicaid in its current form and to oppose any proposals that may limit access for people with cystic fibrosis.
